Errol Milner Clifford 2006-2009

Errol Milner Clifford was born with a significant heart defect and a cognitive disability that prevented him from walking or talking. As we grieved the child we had anticipated, Errol’s full-bodied smile and irrepressible laugh turned our sorrow into joy, and taught us that many of the best things in life are unexpected. Inspired by Errol’s delightful spirit, friends, family, and neighbors rallied to support our family’s significant emotional, physical, and financial needs, through countless acts of selfless generosity. When Errol’s courageous heart finally failed him on December 23, 2009 we were left numb with grief. In these dark hours we listen hopefully for the echoes of Errol’s brilliant laugh. This blog is the story (starting from present and working back to Errol's birth) of the life and times of the amazing Errol Clifford.


Friday, December 18, 2009

Two Steps Back

They don't allow visitors in the PCICU from about 7:00-9:30 each morning. When I left Errol at seven he was struggling just a bit to breathe, but otherwise, he was doing pretty well (all things considered). When I returned at 9:30 Errol had taken a turn for the worse. His sats had dropped and they had him on a mask (check it out - it is made to resemble a purple chicken head - what kind of sicko made the decision to buy masks that look like chicken heads?). Also, Errol has fluid in his right lung, so the docs have sedated him and are putting a chest tube in - again. They've also started him back on his heart medicine, which should also make it easier to breathe. If draining his lungs doesn't help Errol breath they will have to re-intubate him (put a breathing tube down his throat - no fun). We have definitely taken two steps backwards today. But we've done the hospital two-step before, and it's pretty much how Errol rolls. I hate for Errol to be in so much pain, to work so hard to breathe so little, and I hope we can start moving forward again!

Hold the presses. Errol is stable, but a monk just walked into the PCICU and I just about jumped out of my skin. When I think of monks I think of last rights (or Belgian beer - and there's not one bar in this whole damn hospital!) And they call this progress!!!!

7 comments:

Betsy Towns said...

Jonathan-- we out here need to know what's going on and you have the most unbelievable way of combining brutal honesty, and, well, it's been pretty brutal lately, with humor and craft and love that allows all Errol's admirers to share his pain with a measure of his strength. Errol gets great strength from your intelligence and humor, Cary's rich love and wisdom, and Owen's zest for life, creativity, kisses and laughter. Actually you guys all have all of those. Despite all the pain, I can find ways Errol has great luck. As always, thinking of you guys and pushing for steps forward. love, betsy

Allison the Meep said...

Thank you for being so open and honest in sharing Errol's journey with everyone. Every time I see one of these posts, it helps to remind me to keep sending out good thoughts for the little dude.

Carol Kirby said...

We made sure that Errol's posse at school checked the blog before we all left early because of the snow. So much love and energy and hope is pouring out to you from us all at CC... Hang in there Errol.

Anonymous said...

Hang in there Errol!!!! It's hard to be the happiest guy wearing a chicken mask!
We are all still praying hard and thinking POSITIVE thoughts for you and your family. Just keep fighting little buddy!
Much love,
Audrey & Bradley

Anonymous said...

We're thinking of you guys. I hope Errol gets stronger every hour.
Betty, Michael, Kirby & Porter

Anonymous said...

Jonathan and Cary
Hang in there! You are both such strong individuals and together you can support one another and double the strength you are sending out to Errol. You are both in my prayers and thoughts 24/7. Remember, celebrate the little steps and I will continue to pray for bigger and bigger steps to come.

My sweet, sweet Errol. Stay strong! I really miss our breakfast time together! Sending you hugs, kisses, love and lots of strength. I love you little guy!

Ms. Jennifer

Anonymous said...

Two steps back, and then baby steps forward...it is all a part of the journey - you are so strong and courageous - here in Wash Park there is so much love and hope and so many prayers for Errol... and so much SNOW! Sending you loads of love, Jeanne