Errol Milner Clifford 2006-2009

Errol Milner Clifford was born with a significant heart defect and a cognitive disability that prevented him from walking or talking. As we grieved the child we had anticipated, Errol’s full-bodied smile and irrepressible laugh turned our sorrow into joy, and taught us that many of the best things in life are unexpected. Inspired by Errol’s delightful spirit, friends, family, and neighbors rallied to support our family’s significant emotional, physical, and financial needs, through countless acts of selfless generosity. When Errol’s courageous heart finally failed him on December 23, 2009 we were left numb with grief. In these dark hours we listen hopefully for the echoes of Errol’s brilliant laugh. This blog is the story (starting from present and working back to Errol's birth) of the life and times of the amazing Errol Clifford.


Saturday, December 19, 2009

Light


It snowed here last night. It's really cold but beautiful.

Errol is really out of it right now - post-opish. They've got him sedated and doped up on pain meds (sounds like my twenties). No operating heavy machinery for Errol, today. He had a really bad day yesterday - working so hard to breathe - and the PCICU team wants him sleeping and stable for the weekend so that he can get his strength back.

Errol is most likely going to have surgery to have a pacemaker installed either Monday or Thursday. We still hope his heart becomes synchronous, and there are some encouraging signs, but if things stay the same they will have to open him up.
They say it's not a big deal, "we just go into the chest, but we don't have to open up the heart." Try telling that to Errol's poor chest which is just now starting to heal. But I suppose it's better now than later.

We will definitely be here for Christmas and almost certainly for New Year's. Before you feel too sorry for us, please know that there is an espresso stand in the hospital!!!! I know that won't make Errol feel better (they won't let me put him on a latte-drip - bastards!), only getting healthy and home will really do the trick.

Sometimes when I see Errol in pain, straining for breath, miserable, pulling at his tubes, suffering, I wonder if we are doing the right thing to work so hard to save him. I wonder if there is enough light in his life to outweigh the suffering. But if I step out of the PCICU tunnel and look at just one picture of Errol smiling, the wondering stops.

Before the last surgery, I thought we were going to lose Errol. I thought: this is the best person I've ever known (sorry Katie Couric), he's achieved enlightenment, he's spreads joy to all. What a huge pity to lose such a rare and blissful light.

The snow is starting to melt outside. It will be a long time here at the hospital but one day we will step out into the sunlight and Errol will look up to us and smile.

10 comments:

Anonymous said...

Jonathan and Cary and Owen, every day Errol is with us he brings joy. You all are sustaining a bit of the world's precious light.

Dean

Katherine said...

the light is bright in winston! while we miss seeing errol's face every day at school, he doesn't have to be here for us to feel his light. he has just decided to take his joy on tour. merry snow day, errol!

Wakeford said...

I would've loved if my parents had ever bought be a pacemaker for Christmas. It was always books and educational games, etc., for me. Blah. Just further evidence you're the best parents around.

Carol Kirby said...

Thanks for the update... and the "before" picture that brings us hope that he'll get back to that "happy face" pronto. Your posts are a gift to all of us. We love you!

Anonymous said...

Through my some kind of tears I am humbled by your amazing account of life with your precious little fellow. How weary and exhausted you folks must be!

Still sending love, energy and best thoughts aplenty!

Anne Wilson

Anonymous said...

My little buddy is such a fighter...hang in there Errol we have a gift card to Borders to spend....I miss you and your pretty little smile....be strong. You are in my every thought and prayers. Hugs and kisses.
I love you,
Ms Paula

Marigene said...

Dear Jonathan,

Thank you for your honesty. The humor you express lightens the mood, but there is no gift better than the gift of being real.

I want Errol not to suffer, and we pray for this to be easier for him and for you all. This enlightened being named Errol has been a being of light forever. I am honored to feel it from a distance. Much light to you and Cary and all.

Love, Marigene

Anonymous said...

I feel so grateful for you both-
grateful that Errol and Owen have such amazing parents, and so very lucky just to know that you are in the world with us
Mary and I sit daily and read your words and cry and cheer for Errol and send every ounce of positive thoughts your way

starr

SoSock said...

mmmmmm.....
I assume your next post will be titled "Special"? It's a k-mart thing, and a very fitting title as well. Errol is most certainly a special fellow.

Tim

Carol Kirby said...

Your clever friends are almost as much fun to read as you... Blue.... Light.... SPECIAL??? Tooo funny. Sleep well, we love you!