Errol Milner Clifford 2006-2009

Errol Milner Clifford was born with a significant heart defect and a cognitive disability that prevented him from walking or talking. As we grieved the child we had anticipated, Errol’s full-bodied smile and irrepressible laugh turned our sorrow into joy, and taught us that many of the best things in life are unexpected. Inspired by Errol’s delightful spirit, friends, family, and neighbors rallied to support our family’s significant emotional, physical, and financial needs, through countless acts of selfless generosity. When Errol’s courageous heart finally failed him on December 23, 2009 we were left numb with grief. In these dark hours we listen hopefully for the echoes of Errol’s brilliant laugh. This blog is the story (starting from present and working back to Errol's birth) of the life and times of the amazing Errol Clifford.


Sunday, September 06, 2009

Adventures with Errol

The other night, Cary made Errol’s bottle - about a twenty minute task (no joke) and said,

That’s really not so bad!

Here’s what she made:

  • 3 oz. goat milk (we should just get a goat)
  • 3 oz. water (cheap)
  • 6 squirts hydra-aid
  • 1 ml Digoxin
  • 1.4 ml Enalapril (yum)
  • 6.5 ml Motrin
  • 3 ml Ranitidine (yum, yum)
  • 2 ml vinegar (yes, that’s right, vinegar)
  • 81 mg children’s aspirin
  • 1 ml Plavix
  • 2 ml Enulose
  • 1 multivitamin tablet (dinosaurs!!)
  • 1 t probiotics
  • 1 t Maalox (sorry, Errol)

stirred not shaken

The scary thing is that she was right about the bottle getting easier to make. Since his last trip to the hospital, we have stopped giving Errol

1.5 ml Furosemide

and

10 ml Cleocin

Happy days!

It’s a royal pain in the arse, but it’s all worth it. 

My cousin Benjamin (yes, there certainly are a lot of Benjamins in the family: one uncle, three cousins, one great uncle, one grandfather, and a boatload of second cousins) came to visit. This Benjamin’s a doctor so we showed off Errol’s scar to him. Anyone not in the medical profession runs screaming at the sight of Errol’s scar, Dr. Benjamin thought the scar looked great. He asked about Errol’s blood oxygen saturation and I told him it was about 80. He said

What about after the operation?

And I said

That is after the operation.

And he asked

What was it before?

And I told him it had been in the low 70s.

He figured I didn’t know what I was talking about, (who can blame him?) so he did what most people do after they ask me a question. He asked Cary what the real story was. And Cary said,

Yeah, he was in the low 70s.

And Benjamin (ever the adventurer) said,  

That’s like living at 30,000 feet

Everest, is at 29,035, so I’m going to call Errol, Sir Errol Hillary, to congratulate him on conquering such high altitude. 

And this is actually why we have a lot of hope for Errol walking, talking, and generally making merry developmental progress, because now that we’ve got him almost down to sea level, I think we’re going to see great things from our little Sherpa.

30,000 feet!

1 comment:

Sarah Moran said...

Hey Mr. M and Cary and Owen and of course Errol! So glad to hear the last op went alright and that Sir Edmund is on his way back to the top... er, base camp. I'm thrilled to see the community spirit and love surrounding you guys and your little one. Hope all is well, thinking of you!

Sarah