Here's the good news. Part of the reason that Errol’s geneticist, Dr. Saschi, undiagnosed (yes, I made that word up) Errol with RTS is that he has exceeded many of the RTS benchmarks. For example, Errol is way beyond the RTS parameters on the height and weight growth charts: he's now 50% height and 25% weight (with a few more trips to Bojangles I'm sure we can get him over 50%). There were also a couple of physical characteristics for kids with RTS, which he has now grown away from (wide toes, wide thumbs, etc). I want to be clear, Errol is not typical, he has a profound syndrome (we just don't know what it is) and I'm not naive/in denial enough to think he will suddenly become developmentally typical. But we feel thrilled that Errol keeps making progress and exceeding expectations. And, above all, beyond al his physical and developmental progress, his greatest gift: his happiness, is still in abundance, ABUNDANCE. Just spend an hour with Errol and you'll see.
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