Errol Milner Clifford 2006-2009

Errol Milner Clifford was born with a significant heart defect and a cognitive disability that prevented him from walking or talking. As we grieved the child we had anticipated, Errol’s full-bodied smile and irrepressible laugh turned our sorrow into joy, and taught us that many of the best things in life are unexpected. Inspired by Errol’s delightful spirit, friends, family, and neighbors rallied to support our family’s significant emotional, physical, and financial needs, through countless acts of selfless generosity. When Errol’s courageous heart finally failed him on December 23, 2009 we were left numb with grief. In these dark hours we listen hopefully for the echoes of Errol’s brilliant laugh. This blog is the story (starting from present and working back to Errol's birth) of the life and times of the amazing Errol Clifford.


Monday, October 08, 2007

Exceeding Expectations



Here's the good news. Part of the reason that Errol’s geneticist, Dr. Saschi, undiagnosed (yes, I made that word up) Errol with RTS is that he has exceeded many of the RTS benchmarks. For example, Errol is way beyond the RTS parameters on the height and weight growth charts: he's now 50% height and 25% weight (with a few more trips to Bojangles I'm sure we can get him over 50%). There were also a couple of physical characteristics for kids with RTS, which he has now grown away from (wide toes, wide thumbs, etc). I want to be clear, Errol is not typical, he has a profound syndrome (we just don't know what it is) and I'm not naive/in denial enough to think he will suddenly become developmentally typical. But we feel thrilled that Errol keeps making progress and exceeding expectations. And, above all, beyond al his physical and developmental progress, his greatest gift: his happiness, is still in abundance, ABUNDANCE. Just spend an hour with Errol and you'll see.

No comments: